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I am so desperate for people to sign this petition it’s not even funny.

from-the-nave-to-the-chops:

Hey, just wondering… are you in america? Oh shit nvm! So there’s this petition to get Narcolepsy added to the blue book for Social Security Disability and…

Hey guess what?

You know someone with narcolepsy!

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And one day I might not be able to take care of myself because a small little chunk of my brain happened to die. What that little chunk was responsible for was the regulation of my internal clock and due to it’s absence I suffer from:

  • Paralysis
  • Hallucinations (which affect all of my senses)
  • Cataplexy (sudden loss of muscle tone)
  • Excessive Daytime Sleepiness (as if had been up for 72 hrs but on a daily basis because I never sleep.) Yup. You heard me. I never SLEEP.

I look like I’m sleeping but I’m not really sleeping… and medication’s to prevent this from happening are really expensive. Currently, I take a medicine called Xyrem. It contains GHB. There is only one pharmacy in the entire country that produces this medicine and it is $$$$$!

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  • Most narcolepsy medicines are really expensive… 
  • And there isn’t a cure. 

So please sign. I don’t have a lot of support as it is and one day I might not have the luxury of having insurance.

https://petitions.whitehouse.gov/petition/list-narcolepsy-cataplexy-and-ehlers-danlos-syndrome-blue-book-condition-qualify-ssdissi/s3QdHwCR

P.S. Now I know this petition might not be the most eloquent but it’s what we’ve got. So please don’t let that deter you from contributing to our cause. I feel like, at the very least this a wonderful opportunity to promote awareness… so please reblog

(ノ◕ヮ◕)ノ*:・゚✧ Please Please Please Please! And please sign! We have 15 days to get 99,550 more signatures. I know it’s intimidating but with your help I believe it can be done!!! (◡‿◡✿)  

XoXo 

http://from-the-nave-to-the-chops.tumblr.com/ aka http://theepicnarcoleptic.tumblr.com/

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